Myelodysplastic Syndrome Questions to Ask Your Doctor

If you're ready to talk to your doctor about Myelodysplastic Syndrome, we can help. Below is a guide to getting the most of your discussion including questions to ask, general tips for the conversation, and more.


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Myelodysplastic Syndrome Questions for Your Doctor

You have a unique medical history. Therefore, it is essential to talk with your doctor about your personal risk factors and/or experience with MDS. By talking openly and regularly with your doctor, you can take an active role in your care.

General Tips for Gathering Information

Here are some tips that will make it easier for you to talk to your doctor:

  • Bring someone else with you. It helps to have another person hear what is said and think of questions to ask.
  • Write out your questions ahead of time so you don't forget them.
  • Write down the answers you get, and make sure you understand what you are hearing. Ask for clarification, if necessary.
  • Don't be afraid to ask questions or ask where you can find more information about what you are discussing. You have a right to know.

Specific Questions to Ask Your Doctor

About Myelodysplastic Syndrome

  • What type of MDS do I have?
  • This certainly is a complicated group of diseases. What can I do to help myself through it?
  • What sources of information do you recommend-library books, websites, other doctors?
  • Should I see a specialist in bone marrow transplantation soon after my diagnosis is made so I can learn more about the disorder?

About Treatment Options

  • Please keep me well informed of my treatment options so that I may be an active partner in making decisions.
  • Do you recommend I seek out a center that specializes in treating this disease?
  • Where do you recommend?
  • What treatments do you recommend?
  • What are the side effects that I should watch for?
  • What can I do to minimize these side effects?
  • What are the risks and benefits of my treatment options?
  • Do you recommend any of the treatments, such as AzaC?
  • Where can I be treated with AzaC?
  • Should I participate in clinical trials for this condition?

About Lifestyle Changes

  • Please follow me along with input from my loved ones so that we may anticipate necessary changes in my lifestyle and living circumstances.
  • Let us know as early as possible when we should contact hospice care.
  • Is my nutrition adequate?
  • Are there any activities you recommend I stop, like driving, or commence, like an exercise program?

About Outlook

  • It would be helpful to have some idea of how long I have to live, though I know that no one can predict the future.
  • What sort of symptoms can I expect to experience?


Learn what Myelodysplastic Syndrome is
What It Is
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Myelodysplastic Syndrome Causes
What causes Myelodysplastic Syndrome? Learn what the medical community has uncovered.
Myelodysplastic Syndrome Risk Factors
Risk Factors
Are you at risk of getting Myelodysplastic Syndrome? Inside you'll find known risk factors for the condition.
Myelodysplastic Syndrome Diagnosis
How will your doctor diagnose you with this condition? Learn about the tests, process, and more.
Myelodysplastic Syndrome Symptoms
What are the Myelodysplastic Syndrome symptoms? Are you showing any? Learn more today.
Myelodysplastic Syndrome Complications
Can this condition lead to other health problems? Learn more about the known complications.

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Screening for Myelodysplastic Syndrome
Learn more about the specific tests or exams given by your doctor to screen for Myelodysplastic Syndrome.
Myelodysplastic Syndrome Medications
What medications offer relief or help with this condition? Are there side effects? Risks? Learn more.
Myelodysplastic Syndrome Prevention
How can you prevent Myelodysplastic Syndrome? Read what the medical community suggests for prevention methods.
Myelodysplastic Syndrome Treatment
Can this condition be treated? What Myelodysplastic Syndrome treatment options are available?
Myelodysplastic Syndrome Care
Learn more about the day to day care of this condition. Changes to your activity, diet, exercise, and more.
Myelodysplastic Syndrome Doctors
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Do you need to contact a doctor about Myelodysplastic Syndrome? Select a location to find a specialist in your area.

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Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition. Copyright ©2014 EBSCO Publishing All rights reserved. Source: EBSCO