Rett Syndrome Treatment

Can this condition be treated? What Rett Syndrome treatment options are available? Learn more below about the current treatments available to patients.

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How to Treat Rett Syndrome


There is no cure for Rett syndrome. People with this condition need to be monitored for:

  • Skeletal problems
  • Heart problems

Treatment aims to control symptoms and includes:

Medication

  • Anticonvulsants to control seizure activity
  • Stool softeners or laxatives if constipated
  • Drugs to help with breathing
  • Drugs to ease agitation
  • Histone deacetylase inhibitors-Scientists are investigating this group of medications to treat Rett syndrome.

Nutrition Support

  • Small, frequent meals
  • Supplements
  • Tube feeding , if the patient is unable to consume enough food
  • Fluids and high- fiber foods to help control Constipation

Rehabilitation Therapies

  • Occupational therapy-to help patients learn to perform daily activities, such as dressing and eating
  • Physical therapy-to help patients improve coordination and movement (can sometimes prolong the ability to walk), braces and splints may be recommended
  • Speech therapy aids-to build communication skills
  • Social workers-to help a family cope with caring for a child with Rett syndrome

Techniques for Limiting Problem Behaviors

Keeping a diary of your child's behaviors and activities helps determine the cause of agitation. The following may help to prevent or control behavior problems:

  • Warm baths
  • Massage
  • Soothing music
  • Quiet environment


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Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition. Copyright ©2013 EBSCO Publishing All rights reserved. Source: EBSCO