Systemic Lupus Erythematosus Questions to Ask Your Doctor

If you're ready to talk to your doctor about Systemic Lupus Erythematosus, we can help. Below is a guide to getting the most of your discussion including questions to ask, general tips for the conversation, and more.


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Systemic Lupus Erythematosus Questions for Your Doctor

You have a unique medical history. Therefore, it is essential to talk with your doctor about your personal risk factors and/or experience with lupus. By talking openly and regularly with your doctor, you can take an active role in your care.

General Tips for Gathering Information

Here are some tips that will make it easier for you to talk to your doctor:

  • Bring someone else with you. It helps to have another person hear what is said and think of questions to ask.
  • Write out your questions ahead of time, so you don't forget them.
  • Write down the answers you get, and make sure you understand what you are hearing. Ask for clarification, if necessary.
  • Don't be afraid to ask your questions or ask where you can find more information about what you are discussing. You have a right to know.

Specific Questions to Ask Your Healthcare Provider

About Lupus

  • Do I fit the recognized criteria for this diagnosis, or could there possibly be something else that is causing my symptoms?
  • Is there anything unusual about my case?
  • Is there any way to tell how severe my case will become?
  • How safe would it be for me to get pregnant? Would my baby be at increased risk?

About Your Risk of Developing Lupus

  • There are other rheumatologic diseases in my family. Does that increase my risk of lupus?

About Treatment Options

  • Which medications do you recommend that I take?
  • What side effects and benefits can I expect from these medications? Will they affect fertility? Can they be used during pregnancy? Do I need to use birth control while I'm on these medications?
  • Should I be vaccinated against pneumonia , shingles?
  • How soon will I experience relief from these medications?
  • Will I take medications all the time or only when I have a flare-up?
  • Is standard treatment my best choice, or should I look into enrolling in a clinical trial?
    • Will you help me find clinical trials and discuss them with me?
  • Are there other specialists that I should be seeing? Can you refer me?
  • Are there any complementary or alternative therapies I should consider?

About Lifestyle Changes

  • What disabilities can I expect, and in what ways can I prepare for them?
  • I understand that this is a lifetime disease. Are you willing to manage my care in the long-term?
    • How available will you be when, for instance, I think I am beginning a flare-up?
    • Who are the other members of the treatment team: physical therapists, occupational therapists, vocational counselors, home care nurses, etc?

About Your Outlook

  • What can I tell my family and friends about my conditions?
  • How will this affect my roles and relationships with my children, family, friends, and coworkers?
  • What complications should I expect and how can we work to minimize them?


Learn what Systemic Lupus Erythematosus is
What It Is
Learn the basics of this condition. Find out what you're dealing with.
Systemic Lupus Erythematosus Causes
What causes Systemic Lupus Erythematosus? Learn what the medical community has uncovered.
Systemic Lupus Erythematosus Risk Factors
Risk Factors
Are you at risk of getting Systemic Lupus Erythematosus? Inside you'll find known risk factors for the condition.
Systemic Lupus Erythematosus Diagnosis
How will your doctor diagnose you with this condition? Learn about the tests, process, and more.
Systemic Lupus Erythematosus Symptoms
What are the Systemic Lupus Erythematosus symptoms? Are you showing any? Learn more today.
Systemic Lupus Erythematosus Complications
Can this condition lead to other health problems? Learn more about the known complications.

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Screening for Systemic Lupus Erythematosus
Learn more about the specific tests or exams given by your doctor to screen for Systemic Lupus Erythematosus.
Systemic Lupus Erythematosus Medications
What medications offer relief or help with this condition? Are there side effects? Risks? Learn more.
Systemic Lupus Erythematosus Prevention
How can you prevent Systemic Lupus Erythematosus? Read what the medical community suggests for prevention methods.
Systemic Lupus Erythematosus Treatment
Can this condition be treated? What Systemic Lupus Erythematosus treatment options are available?
Systemic Lupus Erythematosus Care
Learn more about the day to day care of this condition. Changes to your activity, diet, exercise, and more.
Systemic Lupus Erythematosus Doctors
Find a Doctor
Do you need to contact a doctor about Systemic Lupus Erythematosus? Select a location to find a specialist in your area.

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Please be aware that this information is provided to supplement the care provided by your physician. It is neither intended nor implied to be a substitute for professional medical advice. CALL YOUR HEALTHCARE PROVIDER IMMEDIATELY IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding a medical condition. Copyright ©2014 EBSCO Publishing All rights reserved. Source: EBSCO