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Struck By A Stroke

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Author Elder Rage
www.ElderRage.com
Host Coping With Caregiving Radio Show
www.wsRadio.com/CopingWithCaregiving

Listen to an overview of one of Jacqueline’s seminars:
http://boss.streamos.com/wmedia/wsradio/elder/121705/segment4.asx

WELCOME BACK ALL MY CAREGIVERS—Tell us your story!
I have been in the San Francisco Bay Area this week seeing my dear "second mom", Norma, who has been struck down by a paralyzing stroke. If you have read my book, you know about her and her daughter, Linda, my best friend since we were five, and her grand-daughter, Kathleen.

Linda had chatted with her mother by phone one morning, but when she called two days later and Norma didn't return her call, she had her cousin (who lives close by) drive by to see if her car was in the driveway. When he reported that it was, yet she didn't answer the door, they called the fire department who broke in to find Norma on the floor of her bedroom, where she had been laying in her own waste for two and a half days.

Linda had visited and checked on her 75-year old mother quite often, but independent Norma said she felt invaded by the numerous calls. She had worked for 38 years, taken care of her husband until his death a decade ago, and taken care of herself and her own home very well her whole adult life, thank you. She even went to the gym three days a week, had her own groups of friends, and didn't see the need to be checked on "like a child."

Now, how Linda wishes she had insisted on checking in on her mother everyday, and insisted further that Norma wear the medic alert necklace they had recently discussed getting. Instead, Linda has had to take an early retirement from her teaching career in order to be able to help her mother.

Unfortunately, since Norma didn't receive help immediately, her prognosis for recovery is doubtful--and since she is not improving and has plateaued, the insurance has stopped paying for her physical therapy. Linda and Kathleen have committed to doing it, of course, hoping she will recover and be able to come home.

Seeing the always-vivacious Norma leaning in her wheelchair, unable to walk or move the left side of her body, and talking without an attention span--has been a heart-breaking experience. I hope that by reading about this tragedy, you will be encouraged to have your elderly loved ones checked on by someone daily, and that you will insist they get an Emergency Response System sooner than later.

Jacqueline Marcell
Author Elder Rage www.ElderRage.com
Host Coping With Caregiving Radio Show www.wsRadio.com/CopingWithCaregiving

Tell us your story!

 

Tom Goodman's picture
~ This blog posting was of great use in learning new information and also in exchanging our views. Thank you. Tom Goodman http://www.medicalalertalarm4u.com
Beth Goethe's picture
This topic hits everyone's heart. Our feelings about protecting our parents from harm is like their feelings about trying to protect us as we grew up. The ironic thing is, we all have a greater chance of getting hurt or killed by driving over to see them than our parents of having a stroke or a fall. What I suggest is try to find the quality time with your parent, rather than thinking of the visit as "checking on them". Trust me, if we seek out and treasure the time we have left, the less guilty we will feel when the time comes to an end. Try to have "moments" with your parent and share feelings. They will be more likely to listen to you when you make suggestions about alert systems, or going to the doctor with them. Try not to always be "on alert" for the worst. Just some suggestions from someone who's been there.
Chris's picture
This is SO hard, this issue. I have struggled with finding a balance between leaving my mother to her independent living and keeping my eye on how to limit the risks she faced. That's compounded by a sometimes determined lack of awareness of the risks that age etc present, even simple things like falls, let alone strokes! Now that i've realized what i was missing by keeping my distance out of respect for her leaves me feeling frustrated and guilty. of course there are no perfect solutions to these ones are there?
JacquelineMarcell's picture
Hi Chris, I know, it is really hard to know when to insist and step in. Unfortunately, those who experience a crisis wish they had sooner. I suggest you alert your mom's neighbors to keep an eye on her in between your calls and visits, and look into a medic alert system that would bring help right away. Many years ago a dear elderly friend of our family took a terrible fall and broke her hip in the back of her big house and was unable to move. It was nearly a week before someone came to check in on her. She was awake, in horrible pain, but just couldn't reach the phone or yell loud enough for anyone to hear. I can't imagine how horrible that must have been. She lingered in the hospital for many months and then passed away.
patricia kelley's picture
lina&norma Prayers to you,checking on elderly parents/parentis not a sure prtectective device. I was standing in the driveway when my 80 yr. old mother fell off the step andbroke her neck, she survived,and lived 16 mo. she had a medi-alert around her neck, and had been in fall prevention therapy. You just never know.
Cindy's picture
Jacqueline, I'm so sorry to hear about Norma. My brother and I talk about how we are in this middle time of life where we have a heavy responsibility at home with our own families and children, in addition to the transition of our parents from independence to dependence. On the parent end, similar to when we all were teenagers, the parent feels very confident and indestructible. Do we have to wait until something happens before we insist they accept help from us? Can we force it on them because we know we are right? My brother's favorite line back at me is "they have the right to be wrong". Then I say to him, "if we see a loved one walking off a cliff, do we let them go?". We just have to walk that fine line of love, concern, and advice, but only when they are ready (assuming they are still of sound mind to make the decisions) can we proceed with helping them. It is SO frustrating. I wish the best for Norma and Linda. Cindy
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